What is CRPS

While I’ve not been formally diagnosed by a pain specialist, Complex Regional Pain Syndrome (CRPS) has come up in conversations with my surgeon, physiotherapists and an anaesthetist.  It’s pretty well accepted that I’ve got a history of CRPS.  Twice now I’ve been hospitalised for 10 days at a time with off the charts pain, swelling and a purple leg. Luckily I’ve recovered from these flare ups with a lot of rest, intensive rehabilitation and the right medication.

I am still working closely with my local pain clinic and I still take the medication, but I’ve learnt a lot about how to manage my pain levels and doubt I’ll have a third episode.  These days my pain levels are manageable 90% of the time but I still have issues with noise, vibrations and bright lights on a daily basis.  But I am relatively functional and doing very well. There are many other CRPS sufferers that are not as lucky as me and it can be a very debilitating disease.  I think I recovered so well due to the prompt action of my doctors and intensive multidisciplinary approach that was taken after each flare up.

Here is a link with more info about CRPS (Kiwi CRPS).  And a beautiful photo of my lovely purple, swollen leg from 2012. My leg was discoloured from hip to toe for about 3-4 months, and then it returned to normal.

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6 thoughts on “What is CRPS”

  1. Hey there,

    I truly hope that you do not have CRPS but attach my support website with lots of info on there for you and feel free to email me as I’d be happy to help. I’ve had CRPS for over 14 years but remain on a quest to heal myself and in turn many others *that’s* the dream! I have lots of healing info in case you do have CRPS to stop it before it becomes permanent. You may be interested to know that while it is at its swollen, purple stage, there IS hope for remission. Please hold onto that hope. I’d avoid many CRPS forums as they are often more frightening than helpful or healing. Wishing you healing on all levels, kindest blessings, Jo x x x

    1. Thanks Jo, I think its very good advice to avoid the CRPS forums, the research I did caused a few sleepless nights! First time around the surgeon said it was CRPS, 2nd time around he said ‘I don’t know’ (full respect, glad to have an honest surgeon), one pain specialist said she didn’t think CRPS (but was elusive), another wouldn’t say either way and my physio said it looks like CRPS. Either way, I got put on drugs commonly used to treat CRPS and with meds, rest and intensive physio I’ve had really good results. Its been 6 months now and the leg discoloration is completely gone and swelling/pain levels settled. I’m doing really well. Here is hoping its either not CRPS (and never happens again) OR it was CRPS and is in remission or has gone away completely. 🙂

      Thanks for the link to your website, its very informative and helpful, lots of juicy information and kind compassionate advice. I’m sorry that you have to go through so much pain for such a long time, the universe works in mysterious ways. It seems so unfair sometimes.

      Be well, and thank you for your support.

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